I read the best post today from a mom in our Down Syndrome-Autism Connection Support Group on Facebook. She wrote about the long journey it took to be able to cut her son’s hair and clip his fingernails without a huge fight, but now at age 25, he can calmly sit through the procedure. It’s a story every mom of a DS/ASD child knows. It takes a lot of time and patience for our children and adults to accept a new routine.
I could really relate.
Continue reading “When Matt Almost Gassed Everyone in the Operating Room…”
I don’t remember if I read Erma’s accolade before or after my Matthew was born, but I do remember when I did read it, my tears blurred the words so badly I could barely get through it. Erma really nailed it. How she did, not having a handicapped child herself, I don’t know. Did she interview professionals? Or doctors and experts? Research statistics or read formal theses? Or did she do what I think she did – just sit and observe and talk to these mothers one by one until her heart became one with theirs. 
